By, A Friend On Facebook
Pain usually dictates what I can do each day. Can I take a shower? Make the bed? Cook a meal or do I resort to frozen dinners? Can I play with my grandchildren outside or do we do color and story time again? Can I go to the store or do I say “tomorrow” for the third day in row?
It isn’t a matter of mind over matter. No matter how much I want, I can’t force my legs to work or bear weight. I can’t stop the nausea from wracking my body or stop tears from my eyes. We see people doing amazing things despite illnesses. And that is awesome. Seriously. I am ecstatic for them.
But as great and celebrated as those stories are and should be, it doesn’t mean every person can do that. Not because want. Not because desire but because not every disease allows it. Not every body can support it.
It’s important for not only society but friends and family realize that us saying no to certain outings or saying hey I can’t go to the movies after the mall isn’t a cop out. It’s truth. It’s our reality. We have stronger awareness of our limitations.
What may leave you tired, may leave us exhausted. What leaves you needing a hot bath, leaves us in bed rest for days. What leaves you fatigued, can land us in the hospital.
Our never ending reality is one full of careful calculations and often times risk. Because we want that few hours of “normalcy” so we push and risk when we shouldn’t. Bear with us and be patient. We are doing the best we can.
I thought that it was important to share this with everyone because not everyone understands what it’s like to live with chonic pain. I for one live with this condition myself, and want people to be aware of what it’s like for people whom experience this condition. Many just don’t understand what it’s like to wake up, go through out the day, and go to bed and try to sleep all while in pain.